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Fool wrote

I guess it depends if these care givers are someone you can trust enough to be honest with. As in, let they know that while you need their help, you would like to retain some level of privacy, and come to an understanding of a line you would like them to not cross.

I don't know how to initiate this communication, most of my problems stem from being unable to communicate things, even though I can talk fine at other times.

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rattledlove1139 OP wrote

True but also think about things like needing help showering, diapering, or dressing and undressing. Can be especially vulnerable to sexual violence when disabled and that trauma can make very hard have help, at the same time might need hands on help to get done so can not really say No.
And then horrible cross section there where sometimes sexual violence happen because not able say no and keep body privacy, not without harm self - especially if rely on abusive family member or partner for caregiver

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